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Patient Stories

Each person's story is unique.

  • However, we know that many people find comfort in hearing from others who have been through something similar. ​

  • This page is a work in progress, over time we hope to add and link you to articles, stories and videos. 

  • If you have suggestions or would like to share your story, please send us an email. 

It took more than a decade to explain the sudden death of my precious teenage son.

  • In this Guardian article, Karen Gardner shares her story and the long journey to identifiy the genetic cause of her son Tom's sudden passing at age 15 years. 

IMPROVE-SCA

Contact us

(02) 9056 4099
clinicalgenomics@garvan.org.au 

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Clinical Genomics Laboratory

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Clinical Genomics Laboratory

IMPROVE-SCA acknowledges the First Australian peoples on whose traditional lands we live and work. We pay our respects to their Elders past and present, and extend that respect to all Aboriginal and Torres Strait Islander peoples. We gratefully accept the invitation in the Uluru Statement from the Heart "to walk with us in a movement of the Australian people for a better future”.

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